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The Experience of Adult Korean Children Caring for Parents Institutionalized with Dementia

Journal of Korean Academy of Nursing 2014³â 44±Ç 1È£ p.41 ~ 54
KMID : 0806120140440010041
±Ç¼öÇý ( Kwon Su-Hye ) - °í½Å´ëÇб³ °£È£´ëÇÐ

Å¿µ¼÷ ( Tae Young-Sook ) - °í½Å´ëÇб³ °£È£´ëÇÐ

Abstract

Purpose: The purpose of the study was to explore and describe the experience of adult Korean children who are caregivers for parentsinstitutionalized with dementia.

Methods: Participants were fourteen adult children caregivers of elders institutionalized with dementia.
Data were collected through in-depth unstructured interviews with individual participants from August to November, 2012. Theoreticalsampling was used to the point of theoretical saturation. Data were analyzed using Strauss and Corbin¡¯s Grounded Theory Method.

Results: From open coding, 67 concepts, 29 sub-categories, and 14 categories were identified. Analysis revealed that the core category ofthe experience of adult children caring for their parents institutionalized with dementia was ¡®enduring the role of a prop¡¯ consisting of fourphases: initial turmoil, exploration, role adjustment, and acclimation. To manage the role of a prop, participants utilized various action/interactionalstrategies such as overcoming the unfamiliarity, overseeing the nursing home care, and counterbalancing the caring roles. Asa result, participants experienced ambivalence towards the existence of parents with dementia, changes in family relationships, alteredviewpoint towards nursing homes, and restructuring of life.

Conclusion: In-depth understanding of the experience will guide nurses topromote effective interventions in order to better support the Korean family caregivers of parents institutionalized with dementia.
KeyWords
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Nursing home, Institutionalization, Dementia, Adult children, Family caregivers
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